Carers Support

Caring for a relative or friend who have a bowel problem may not be easy. It is likely to have a big emotional and physical impact for the person you care for and can also have an emotional impact on you.

If you are caring for a relative or friend, you may be referred to as a ‘supportive carer’ or an ‘informal carer’. Your role is of great importance. Not only do you help your relative/friend to manage their problems physically, e.g. taking them to the toilet, helping them wash themselves, you also provide support emotionally. It is likely that you are their shoulder to cry on and a listening ear. Caring for someone full time can place a huge burden on both parties.

Helping your partner or friend feel better about their problems

Many adults who have a bowel problem are very embarrassed about their condition and often feel isolated and alone. You as a carer can help them understand that there is help and support available and improve their daily life by making them feel better about their condition.

It is important that you respect the wishes of the person suffering with bladder and/or bowel problems. We are all individual and deal with problems in different ways.

Let them know how common their problems are. This will help to get rid of their feelings of isolation and embarrassment and will help them to understand that there are many others with similar problems.

Be sensitive to their feelings. For most people who have always lived independently, having to accept help from others for basic help and care can be very difficult. A carer’s most important job is to help maintain the person’s dignity as much as possible. Be aware of how you refer to their continence products, try not to refer to products as ‘nappies’ and other similar words but rather, refer to products as pads, underwear, special products/aids etc.

Try to let the person you are caring for be in control as much as possible. Allow the person to make as many decisions relating to their problems on their own.

Avoid discussing their condition and details of their care with others.

Try and understand their condition. Find out as much as you can about their condition and associated problems. This will help you to achieve a better understanding about their needs. It might be useful to have a discussion with your partner or friend’s doctor or continence advisor. Ask for the person’s permission first.

Specialist equipment

There are specialist products that can help you to look after your partner or friend. Products such as commodes, raised toilet seats, hand rails etc could help you physically look after them and manage their continence issues. Contact your continence advisor who may be able to recommend products and point you in the right direction and refer you to an occupational therapist. They may arrange to provide equipment and fit hand rails. Your GP or district nurse can also refer you.

Managing continence problems in the home

Make it easy for the person you care for to reach a toilet quickly. This should help to prevent accidents. Putting a commode, bedpan or urinal close to their bed or chair may also be helpful if they have mobility problems.

Try to be prepared for any accidents or any situation where the person that you are caring for would feel uncomfortable or embarrassed.

Managing continence problems out of the home

Be prepared when you are away from home. When you are out and about, try and be aware of where the nearest toilet is. B&BF can provide a ‘Just Can’t Wait’ card which may help you to gain access to a toilet when out shopping and socialising. The card states that the card holder has a medical condition which requires urgent need of a toilet. It is also ok for you to use disabled toilets. They have more space for you to change, and often disposal facilities. Some are operated under the National Key Scheme organized by RADAR. A special key can be bought from the Disability Rights UK website.

It would be helpful to bring a bag with you when you go out containing the following products that you may need; continence products, hand wipes, spare underwear in case of an accident etc.

Financial benefits

If you are caring for someone with a bowel problem you may be entitled to benefits such as a Carers Allowance. In most cases you have to give 35 hours of care each week in order to claim Carer’s Allowance. You may also be eligible for help from Social Services who could provide some help so that you can take a break. Your needs as well as the person you are caring for should be assessed. Contact your local authority to find out more.

For further information about carers rights contact Carers UK, an organisation who provides a voice for carers throughout the UK.

Website: www.carersuk.org Carers Line: 0808 808 7777 available Monday – Friday 10am-4pm